Showing posts with label health. Show all posts
Showing posts with label health. Show all posts
Thursday, April 15, 2010
17 - Counting Chromosomes
All three of us were sucking on Tootsie Pops from the embryologist's stash of candy, and enjoying ourselves even while I was quite uncomfortable with each of the three poking sessions. The expert prenatal diagnostician who was a pioneer of this CVS (Chorionic Villus Sampling ) procedure in the United States, and who would soon become my primary ob/gyn, was taking samples from the chorion (pre-placental) tissue of each twelve week old fetus. Genetic tests would give us valuable information about the health of each fetus enabling us to make the best decisions about their care. Some of the most dire chromosomal outcomes happen when there are too many or too few chromosomes. While we were counting days until the results came in, some geneticist was counting chromosomes.
Omer counting is bound by a thick cord to my pregnancy because my first success at counting each day was when I was on bed rest counting towards the goal of carrying my three beyond the average triplet term of 32 weeks to 33 weeks. In 5768/2008 getting through the Omer counting period was the Jewish calendar's way of determining life and death. Had I gone into labor at the beginning of the omer they would have been 26 weeks, not really viable. For those of you now thinking that usually pregancy lasts 40 weeks, it is significant that fifty percent of triplet pregnancies end at 28 weeks. And those surviving babies can be under 2 pounds with scary odds and need lots of intervention and months of NICU time. I wrote my first ever omer piece last year in reflection of that very real counting towards life (I will share it with you for tomorrow in advance of counting on Shabbat). I went into labor on Shavuot, just after the counting ended, and after five more days in the hospital holding them in just a bit longer they were born.
All chromosomes had previously been accounted for. Upon hearing the results, minus the gender determination, we were relieved to learn that there were no chromosomal abnormalities. Genetic tests give valuable information that may determine the course of a pregnancy and pre-natal treatment. Multiple gestations complicate the environment because one fetus in distress can threaten the others. Done between 10-12 weeks of pregnancy, CVS gives results much sooner than amniocentesis and give more options to expectant parents – again especially in multiple pregnancies or for families with known genetic concerns. Though we weren't in the latter category, it is significant that technology makes it possible to genetically test embryos before they are implanted. The impact of this is huge. When the genetic panel blood draw shows that wanna-be parents, or genetic donors, are carriers of Jewish genetic diseases (or other less common ones) the information may lead to a decision to pursue in vitro fertilization (IVF) and pre-implantation embryonic genetic screening. With chromosomal abnormalities that always prevent a pregnancy from producing a child, this can spare the mother. With genetic diseases that will bring disability or pain it is helpful information that may help families prepare.
Connection to my synagogue community and several sunny hours at shul today in meetings and shmoozing inspired this kind-of preachy topic. In my home community this Shabbat is Jewish Genetics Shabbat co-sponsored by the national resource Chicago Center for Jewish Genetic Disorders when we will hear personal stories from the bimah Shabbat morning. Community is the partner theme for today. I felt so at home today at shul, warmed by the real community feeling. I think in my original omer essay I commented on the community support during our high risk pregnancy and challenging start so I won't go further with that here. For today, in the present, I'm happy to be getting back to being a contributing member of the community, helping to care for those who cared for me, and those who will in turn share with others in their need.
Abundant blessings in our community mean that I cannot even count the number of people who assisted us in our times of need. Once we got past counting chromosomes, and counting days till our babies entered the world, we got busy counting fingers and toes, diapers and bottles, hours of sleep. Nearly two years later we get to count ourselves blessed with a full family and a close community for sharing caring. Now that is worth counting each day.
Today is the 17th day of the Omer, 2 weeks and 3 days of the Omer.
Also this Shabbat is Netivot/Pathways, a contemplative alternative morning of meditation, yoga and more. We will try to coordinate timing with the Jewish Genetic Shabbat speakers, then continue Netivot/Pathways with a Spiritual Direction session and more.
and for personal practice: try listening to another person's story with the intent of only listening for the bigger picture, what is important to THEM, where God is in it for them. take a break from comparing yourself, from critiquing their decisions or life, from correcting them or giving advice. this is the practice of Spiritual Direction; you can try it for your self. I welcome your reactions and responses.
Omer counting is bound by a thick cord to my pregnancy because my first success at counting each day was when I was on bed rest counting towards the goal of carrying my three beyond the average triplet term of 32 weeks to 33 weeks. In 5768/2008 getting through the Omer counting period was the Jewish calendar's way of determining life and death. Had I gone into labor at the beginning of the omer they would have been 26 weeks, not really viable. For those of you now thinking that usually pregancy lasts 40 weeks, it is significant that fifty percent of triplet pregnancies end at 28 weeks. And those surviving babies can be under 2 pounds with scary odds and need lots of intervention and months of NICU time. I wrote my first ever omer piece last year in reflection of that very real counting towards life (I will share it with you for tomorrow in advance of counting on Shabbat). I went into labor on Shavuot, just after the counting ended, and after five more days in the hospital holding them in just a bit longer they were born.
All chromosomes had previously been accounted for. Upon hearing the results, minus the gender determination, we were relieved to learn that there were no chromosomal abnormalities. Genetic tests give valuable information that may determine the course of a pregnancy and pre-natal treatment. Multiple gestations complicate the environment because one fetus in distress can threaten the others. Done between 10-12 weeks of pregnancy, CVS gives results much sooner than amniocentesis and give more options to expectant parents – again especially in multiple pregnancies or for families with known genetic concerns. Though we weren't in the latter category, it is significant that technology makes it possible to genetically test embryos before they are implanted. The impact of this is huge. When the genetic panel blood draw shows that wanna-be parents, or genetic donors, are carriers of Jewish genetic diseases (or other less common ones) the information may lead to a decision to pursue in vitro fertilization (IVF) and pre-implantation embryonic genetic screening. With chromosomal abnormalities that always prevent a pregnancy from producing a child, this can spare the mother. With genetic diseases that will bring disability or pain it is helpful information that may help families prepare.
Connection to my synagogue community and several sunny hours at shul today in meetings and shmoozing inspired this kind-of preachy topic. In my home community this Shabbat is Jewish Genetics Shabbat co-sponsored by the national resource Chicago Center for Jewish Genetic Disorders when we will hear personal stories from the bimah Shabbat morning. Community is the partner theme for today. I felt so at home today at shul, warmed by the real community feeling. I think in my original omer essay I commented on the community support during our high risk pregnancy and challenging start so I won't go further with that here. For today, in the present, I'm happy to be getting back to being a contributing member of the community, helping to care for those who cared for me, and those who will in turn share with others in their need.
Abundant blessings in our community mean that I cannot even count the number of people who assisted us in our times of need. Once we got past counting chromosomes, and counting days till our babies entered the world, we got busy counting fingers and toes, diapers and bottles, hours of sleep. Nearly two years later we get to count ourselves blessed with a full family and a close community for sharing caring. Now that is worth counting each day.
Today is the 17th day of the Omer, 2 weeks and 3 days of the Omer.
Also this Shabbat is Netivot/Pathways, a contemplative alternative morning of meditation, yoga and more. We will try to coordinate timing with the Jewish Genetic Shabbat speakers, then continue Netivot/Pathways with a Spiritual Direction session and more.
and for personal practice: try listening to another person's story with the intent of only listening for the bigger picture, what is important to THEM, where God is in it for them. take a break from comparing yourself, from critiquing their decisions or life, from correcting them or giving advice. this is the practice of Spiritual Direction; you can try it for your self. I welcome your reactions and responses.
Wednesday, April 14, 2010
16 - Lessons on Kabbalah
Thought I'd arrived in the looney bin the way all five veterinary staff were oohing and ahhing and baby-talking to my dog as we stepped through the threshold of the office. Really, they were going ga-ga about how cute, how sweet, how excited he was, each of them calling him by name. It seemed way over the top and was more gooey affection than I think the dog has ever received.
When I walk into the pediatrician's office with my truly gush-worthy adorable triplets the staff barely even says hello. They have never greeted me much less my children with more than a glance. Aware of the numerous issues, I have made every attempt to make nice, introduce myself, ask for their names, call them by name. Once I even brought chocolate for the front staff. Still, no smiles, no love. What's wrong with this picture?
The beauty of this omer counting practice is that I can't do it prematurely. The mitzvah requires counting after nightfall which cultivates a certain waiting and listening for the message to become clear. Just like the practice of Spiritual Direction cultivates discernment. Sure, this morning I was sure that I could write a whole entry about how I no longer think dogs are people, even though they might think themselves human, and that with huge expenses and time demands from four children my dogs have been demoted back to canines.
One story I will still share is how I responded aghast to someone who asked while I was pregnant what we would do with the dogs once the triplets arrived. “What will you do with your child when you have another one?” I questioned. Ha! Now it's time for me to admit that I was illusional. Mea culpa. S'licha. During one near breakdown during the first survival year, with great awareness of my limited resources – time, money and sanity, I decided the dogs were done. My first baby and her adopted buddy had become a burden I couldn't bear so my husband claimed sole responsibility for their care. Still here, there's no chance they'll get to go to day care as my vet suggested today unless I can easily afford to enroll my real human children in classes.
Earlier I honked at a car that was picking up speed driving in the shoulder and possibly pulling out into my lane and her pedestrian friend yelled out a nasty comment to me. Before that I stopped at a green light for an imminently approaching ambulance and the car in the left lane gunned it through the intersection. Things like this make me so mad. Not road rage mad, just frustrated and sad. Why are people so on edge? Or so indifferent?
I trust my childrens' lives to the pediatrician's office and they can't even bring themselves to smile and be friendly. When I call with an issue I have to leave a message and it takes hours to get a call back; the vet office talked to me right then, and called me back exactly when promised with a message from the doc. They scheduled me for the very next morning; getting an urgent appointment at the pediatrician's office takes pressure, sometimes a demand. Several times my attempts failed and I had to go to the ER with a $150 co-pay (per child!) because the pediatric practice schedule was full. Many times I have considered switching offices and probably will do it one day, but I love our doctor. She is the reason we chose this practice and the reason we stay.
The contrast between the Veterinary Office and the Pediatrician's office is stark. Although I try to shy away from politics this is surely about health care policy and our country's priorities. Backed up by the huge rise in pets given up for adoption because their owners can't afford to feed themselves in this economy let alone feed their pets, I know pet ownership is a luxury. And this veterinary office has more art on the walls than my childrens' pediatric office.
Health care for humans is not a luxury, it is a right. And providers should be just as excited and eager to see each patient as these crazy animal people are to see my hyper dog. An enthusiastic reception from my vet people shouldn't be such a surprise. Service like that should be expected and required from all health care providers – especially those who treat humans, who save our lives and support our return to health. Medicine is medical, I get that, yet people are more than bodies. We are souls and need to be treated as such.
In Hebrew the word for reception (such as at a hotel) is kabbalah. Hospitality is implied in every meeting and greeting. Within the word is the action of welcoming the person who approaches with the same mystical and sacred intent as with which we receive revelation, light, and all the greatest gifts. That is how my dog was greeted today and should be how we each greet each other in every instance.
And, for this 16th day, two weeks and 2 days of the omer, I offer a blessing for justice and dignity, for honor and love. For every member of our human family, and also for our animal friends.
Today is the 16th day of the Omer.
Practice: It's a good time to practice breathing. In. Out. Slower inhale, slower exhale. Deeper inhale, deeper exhale. Inhale peace and goodness, exhale and let go, release. Breath life, your soul. Follow the circle of life in and out of your body, with curious attention to your breath. With each breath, relax a different part of your body, beginning with the top of your head, slowly through each area, all the way to your toes. Let balance and love and compassion establish themselves in your present moment.
When I walk into the pediatrician's office with my truly gush-worthy adorable triplets the staff barely even says hello. They have never greeted me much less my children with more than a glance. Aware of the numerous issues, I have made every attempt to make nice, introduce myself, ask for their names, call them by name. Once I even brought chocolate for the front staff. Still, no smiles, no love. What's wrong with this picture?
The beauty of this omer counting practice is that I can't do it prematurely. The mitzvah requires counting after nightfall which cultivates a certain waiting and listening for the message to become clear. Just like the practice of Spiritual Direction cultivates discernment. Sure, this morning I was sure that I could write a whole entry about how I no longer think dogs are people, even though they might think themselves human, and that with huge expenses and time demands from four children my dogs have been demoted back to canines.
One story I will still share is how I responded aghast to someone who asked while I was pregnant what we would do with the dogs once the triplets arrived. “What will you do with your child when you have another one?” I questioned. Ha! Now it's time for me to admit that I was illusional. Mea culpa. S'licha. During one near breakdown during the first survival year, with great awareness of my limited resources – time, money and sanity, I decided the dogs were done. My first baby and her adopted buddy had become a burden I couldn't bear so my husband claimed sole responsibility for their care. Still here, there's no chance they'll get to go to day care as my vet suggested today unless I can easily afford to enroll my real human children in classes.
Earlier I honked at a car that was picking up speed driving in the shoulder and possibly pulling out into my lane and her pedestrian friend yelled out a nasty comment to me. Before that I stopped at a green light for an imminently approaching ambulance and the car in the left lane gunned it through the intersection. Things like this make me so mad. Not road rage mad, just frustrated and sad. Why are people so on edge? Or so indifferent?
I trust my childrens' lives to the pediatrician's office and they can't even bring themselves to smile and be friendly. When I call with an issue I have to leave a message and it takes hours to get a call back; the vet office talked to me right then, and called me back exactly when promised with a message from the doc. They scheduled me for the very next morning; getting an urgent appointment at the pediatrician's office takes pressure, sometimes a demand. Several times my attempts failed and I had to go to the ER with a $150 co-pay (per child!) because the pediatric practice schedule was full. Many times I have considered switching offices and probably will do it one day, but I love our doctor. She is the reason we chose this practice and the reason we stay.
The contrast between the Veterinary Office and the Pediatrician's office is stark. Although I try to shy away from politics this is surely about health care policy and our country's priorities. Backed up by the huge rise in pets given up for adoption because their owners can't afford to feed themselves in this economy let alone feed their pets, I know pet ownership is a luxury. And this veterinary office has more art on the walls than my childrens' pediatric office.
Health care for humans is not a luxury, it is a right. And providers should be just as excited and eager to see each patient as these crazy animal people are to see my hyper dog. An enthusiastic reception from my vet people shouldn't be such a surprise. Service like that should be expected and required from all health care providers – especially those who treat humans, who save our lives and support our return to health. Medicine is medical, I get that, yet people are more than bodies. We are souls and need to be treated as such.
In Hebrew the word for reception (such as at a hotel) is kabbalah. Hospitality is implied in every meeting and greeting. Within the word is the action of welcoming the person who approaches with the same mystical and sacred intent as with which we receive revelation, light, and all the greatest gifts. That is how my dog was greeted today and should be how we each greet each other in every instance.
And, for this 16th day, two weeks and 2 days of the omer, I offer a blessing for justice and dignity, for honor and love. For every member of our human family, and also for our animal friends.
Today is the 16th day of the Omer.
Practice: It's a good time to practice breathing. In. Out. Slower inhale, slower exhale. Deeper inhale, deeper exhale. Inhale peace and goodness, exhale and let go, release. Breath life, your soul. Follow the circle of life in and out of your body, with curious attention to your breath. With each breath, relax a different part of your body, beginning with the top of your head, slowly through each area, all the way to your toes. Let balance and love and compassion establish themselves in your present moment.
Labels:
civility,
dignity,
health,
health care policy,
honor,
human dignity,
justice,
kabbalah,
mitzvah,
Omer,
pediatrician,
soul,
Spiritual Direction,
triplets,
veterinarian
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